中国人群健康相关生命质量概念框架构建:基于一般人群与疾病患者的质性研究
Development of the conceptual framework for health-related quality of life in Chinese populations:A qualitative study based on the general population and patients
陈丕楠 1贺小宁 1谢诗桐 1吴晶 1赵琨 2谢锋3
作者信息
- 1. 天津大学医学部药物科学与技术学院 天津 300072;天津大学社会科学调查与数据中心 天津 300072
- 2. 清华大学万科公共卫生与健康学院 北京 100044
- 3. 加拿大麦克马斯特大学健康研究方法、证据与影响系卫生经济和政策研究中心 加拿大汉密尔顿 L8S4K1
- 折叠
摘要
目的:探索中国人群对于健康相关生命质量(Health-related quality of life,HRQoL)定义的理解,构建中国人群HRQoL概念框架,用于指导中国人群HRQoL测量工具研发.方法:从全国31 个省市招募中国一般人群与疾病患者样本,通过开展一对一半结构化质性访谈收集其对HRQoL的看法与理解.基于扎根理论对质性信息进行多层次编码,利用框架法对编码进行梳理、归纳,构建中国HRQoL概念框架.结果:共纳入68 名受访者,研究从质性信息中提取1 558 个一级编码,分析整理为180 个二级编码、31 个三级编码,最终归纳出6 个主题的中国人群HRQoL概念框架.结论:基于中国人群健康观念构建的HRQoL概念框架包含症状、身体功能、情绪、认知、活动、社会功能6 个主题,其中尤以胃口/食欲、睡眠和疲乏维度显示出HRQoL概念的中国文化特异性.
Abstract
Objective:To explore the understanding on health-related quality of life(HRQoL)among the Chinese populations and to develop a HRQoL conceptual framework that can be used to guide the development of Chinese HRQoL instruments.Methods:Respondents of Chinese general population and patients populations were recruited from 31 provinces in China.One-to-one semi-structured qualitative interviews were conducted to collect the views and perceptions on HRQoL.Based on the grounded theory,multi-level coding of qualitative interviews was carried out,and the framework method was used to sort out and summarize the coding to develop the HRQoL conceptual framework in China.Results:A total of 68 respondents were included in the study.The study extracted 1 558 open coding from the qualitative interview,which were analyzed and sorted into 180 axial coding and 31 selective coding(dimensions).The HRQoL conceptual framework for the Chinese population with 6 themes was finally summarized.Conclusions:The HRQoL conceptual framework based on the health concepts and preferences of the Chinese population contains 6 themes,refers to symptoms,physical function,emotion,cognition,activities and social function.In particular,the items of appetite,sleep and fatigue identifies may reflect Chinese cultural specific perceptions on important aspects of HRQoL.
关键词
健康相关生命质量/概念框架/中国人群/质性研究Key words
Health-related quality of life/Conceptual framework/Chinese population/Qualitative study引用本文复制引用
出版年
2024
NETL
NSTL
万方数据