首页|青少年首发抑郁症患者家庭照顾者照护体验的定性研究

青少年首发抑郁症患者家庭照顾者照护体验的定性研究

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目的:探索青少年首发抑郁症患者家庭照顾者的照护体验。方法:选取青少年首发抑郁症患者家庭照顾者9名,使用自制的访谈提纲对照顾者的情绪状态、疾病认知、照护体验与困境、应对方式、支持需求进行个人深度访谈。采用Colaizzi现象学7步分析法分析、归纳、提炼资料。结果:提取照护体验的4个一级主题(照护体验复杂、照顾负担沉重、亟需资源支持、实现创伤后成长),分为震惊与怀疑、悲观与无助、内疚与病耻感、低效应对状态、心身健康受损、经济负担沉重、家庭关系紧张、个人角色转变、医疗资源支持不足、渴望正常接纳10个二级主题。结论:研究提示青少年首发抑郁症患者家庭照顾者负性体验明显,面临健康受损、经济生活负担等困境,亟需专业资源和社会支持。
A qualitative study of family caregivers'experiences of caring for adolescents with first-episode depression
Objective:To explore the care experience of caregivers of adolescents with first-episode depres-sion.Methods:Nine family caregivers of adolescent with first-episode depression were enrolled.A qualitative re-search was carried out,and semi-structured interviews were performed to investigate the caregivers'opinion of de-pressive disorder,emotional state,caring experiences and dilemma,coping strategy,and support requirements.The data were analyzed,summarized and distilled by using the Colaizzi phenomenological 7-step analysis.Results:Four kinds of first order themes of caring experiences(complex caring experience,heavy burden of care,yearn for sup-port,achieved post-traumatic growth)were extracted,including 10 kinds of second order themes,namely shock and disbelief,pessimism and helplessness,guilt and stigma,inefficient coping strategy,impaired physical and mental health,heavy economic burden,family relationship tension,changed personal role,lack of medical support,dying to be admitted by society.Conclusion:Family caregivers of adolescent with first-episode depression may have obvious negative emotions,which faced with caring dilemma such as impaired health status or heavy economic burden,and urgently need professional resources and social support.

first-episode depressionadolescentcare experiencequalitative research

陈婷婷、王润超、朱树贞、孙超、李龙倜

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湖北医药学院护理学院,湖北十堰 442000

十堰市太和医院,湖北十堰 442000

首发抑郁症 青少年 照护体验 定性研究

2019年度湖北省教育厅项目

19D072

2024

中国心理卫生杂志
中国心理卫生协会

中国心理卫生杂志

CSTPCDCHSSCD北大核心
影响因子:2.088
ISSN:1000-6729
年,卷(期):2024.38(2)
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